MyRareData exists to help rare patient groups raise money through data.
Rare diseases impact 1 out of 10 people globally and only 5% have an approved cure.
While rare patients fight hard and often with few tools to improve their quality of life and drive research for a cure, their data is critical to an industry that spends $20B annually on healthcare data analytics.
By taking control of the real world data they generate, rare patients now have a new way to gain leverage and reach their goals faster.
We empower patients and patient groups with data in two ways:
1) Proliferate the use of digital health tools to help rare patients manage their conditions.
2) Help patient groups participate in the business models enabled by the digital health economy.
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