Opportunities in Rare World Data
Our Mission
What we are doing about it
Why it matters
MyRareData’s mission is to help rare patient groups raise money through mutually beneficial digital health collaborations
Why it matters
What we are doing about it
Why it matters
Rare diseases impact 1 out of 10 people globally and only 5% have an approved cure.
While rare patients fight hard and often with few tools to improve their quality of life and drive research for a cure, their data is critical to an industry that spends $20B annually on healthcare data analytics.
By taking control of the real world data the
Rare diseases impact 1 out of 10 people globally and only 5% have an approved cure.
While rare patients fight hard and often with few tools to improve their quality of life and drive research for a cure, their data is critical to an industry that spends $20B annually on healthcare data analytics.
By taking control of the real world data they generate, rare patients can gain leverage and reach their goals faster.
What we are doing about it
What we are doing about it
What we are doing about it
We empower patients and patient groups with data in two ways:
1) Proliferate the use of digital health tools to help rare patients, families & caregivers improve their lives
2) Help patient groups participate in the business models enabled by the digital health economy.
How do we do it?
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